Meet the G2NA Steering Group

Dr Kathleen Calzone and Dr Jean Jenkins from the USA, with Professor Maggie Kirk and Associate Professor Emma Tonkin (UK) first started exploring the value of coordinated international effort to promote genomics in nursing in 2011. The team swiftly expanded to incorporate Professor Laurie Badzek (USA), Dr Caroline Benjamin and Professor Anna Middleton (both from the UK). Dr Christine Patch (UK) joined the Leadership Team in 2017, taking over as co-lead from Maggie Kirk in 2018. Dr Sarah Dewell (Canada) and Dr Andrew Dwyer (USA) have since joined the Steering Group.

The Steering Group Leads

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Dr Kathleen Calzone (Co-lead)
Kathleen Calzone, PhD, RN, AGN-BC, FAAN, is a Research Geneticist in the Genetics Branch of the Center for Cancer Research (CCR) at the National Cancer Institute (NCI). She serves as the CCR Genomic Program Administrator for the implementation of the National Institutes of Health Genomic Data Sharing Policy. She is board certified in genetics by the American Nursing Credentialing Commission and is a Fellow of the American Academy of Nursing. Dr. Calzone is a former president of the International Society of Nurses in Genetics and co-chaired the effort to establish the Essentials of Genomic and Genomic Nursing: Competencies, Curricular Guidelines, and Outcome Indicators, and the Genomic Nursing Science Blueprint. She is also one of the founders of Global Genomics Nursing Alliance. Dr. Calzone has sustained a research program in the translation of genomics into research, practice and education.
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Associate Professor Emma Tonkin (Co-lead)
Emma Tonkin PhD, BSc (Hons), is Associate Professor within the Genomics Policy Unit (GPU) at the University of South Wales, UK. She has a background in human genetics (molecular biology, gene mapping and identification), completing her PhD following periods of research at the Universities of Cardiff and Aberdeen and postdoctoral research at the Institute of Human Genetics, Newcastle University. She moved to the GPU in 2005 where her research position ran concurrently (until 2012) with her role as Education Development Officer for the Nursing Professions Programme at the NHS National Genetics Education and Development Centre. Emma’s work focuses on health professional education and engagement, and service development initiatives for mainstreaming genetics/genomics. She regularly teaches nursing and midwifery students at the university and has been closely involved in the design, development and expansion of the free online genetics teaching and learning resource Telling Stories, Understanding Real Life Genetics (http://tellingstories.nhs.uk/) aimed at health professionals working outside specialist genetic services. Emma has been a Board member of the International Society for Nurses in Genetics and she managed training and development events for Research Capacity Building Collaboration (RCBC) Wales, a scheme for nurses, midwives, pharmacists and allied health professionals, from 2015- 2018. Follow Emma on Twitter @emmattonkin

Steering Group Members - Current

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Dean and Professor Laurie Badzek
Laurie A. Badzek LLM, JD, MS, RN, FNAP, FAAN, is the Dean of the College of Nursing at Penn State University. Prior to coming to Penn State, she served as the Director of the UNCW School of Nursing in the College of Health and Human Services. Previous to her administrative positions she was a tenured professor at the West Virginia University (WVU) School of Nursing. She served the state of West Virginia in the School of Nursing and in a variety of nursing positions in the DHHS and WVU Hospitals for 30 years. Laurie earned her BSN and her JD from WVU Schools of Nursing and Law. While at the College of Law, she was a member of the Moot Court Board and inducted into both the Order of the Barristers and the Order of the Coif Honoraries. She is also a member of the Sigma Theta Tau Nursing Honorary for research and scholarship. She received her MS in Nursing and her LLM in Health Care Law from DePaul University in Chicago. For nearly 18 years, Laurie was the director of the American Nurses Association (ANA) Center for Ethics and Human Rights retiring from that position in December 2017. She is considered a national and international leader and spokesperson on ethics and health care policy. She guided the revision of both the 2001 and the 2015 US Code of Ethics for Nurses. In addition, she participated in the development and revisions of the essential nursing competencies for genomics and was the PI on one of the largest US studies examining the translation of genomics to bedside care. As an active researcher, her interests have spanned ethical and legal health care issues including patient and family decision making, genomics, and professional healthcare ethics.
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Dr Sarah Dewell
Sarah Dewell PhD, MSc., RN, is a Postdoctoral Associate within the Faculty of Nursing at the University of Calgary, Calgary, Alberta, Canada. Prior to becoming a registered nurse, she completed a BSc. and MSc. at the University of British Columbia. Her Masters work focused on the identification of genes responsible for nonsyndromic cleft lip and palate in a mouse model. Following the completion of her BN degree at the University of Calgary, she practiced almost exclusively in adult mental health, focusing primarily on seniors mental health in rural communities. She completed her doctoral studies in the Faculty of Nursing at the University of Calgary in 2019. Her studies included an examination of genetic and genomic conceptual knowledge among undergraduate nursing students and faculty, as well as a comprehensive qualitative analysis of attitudes about adding this content to the current curriculum. She is currently working on creating a knowledge engagement hub which includes online educational content on foundational genomic concepts in the context of nursing practice, as well as opportunities for nurses to learn about genomic nursing education, research and practice. Her other postdoctoral work includes supporting curriculum innovation and evidence-based nursing education in connection with the revisioning of an undergraduate nursing curriculum. She co-chairs the International Society of Nurses in Genetics (ISONG) Global Membership Committee. Follow Sarah on Twitter @drsarahdewell
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Dr Andrew Dwyer
Andrew A. Dwyer, PhD, FNP-BC, FNAP is an Assistant Professor of Nursing at Boston College and Researcher at the Massachusetts General Hospital (MGH) with appointments in the MGH-Harvard Center for Reproductive Medicine and the Munn Center for Nursing Research. Dr. Dwyer is a board certified Family Nurse Practitioner with 20 years of experience in reproductive endocrinology, gene discovery and translational research at the MGH and the University Hospital of Lausanne (Switzerland). He specializes in genetic disorders of growth and puberty and transitional care for young adults with genetic conditions. He presents internationally and has authored/co-authored >100 publications on these topics. He is an Associate Editor for Human Reproduction, is a faculty member at the RaDIZ Rare Diseases Summer School (Switzerland) and holds leadership positions in several professional organizations. He is the former Vice-Chair of the European Society of Paediatric Endocrinology (ESPE) Nurses Working Group and member of the European Society of Endocrinology (ESE) Nurses Working Group. He currently serves on the International Society of Nurses in Genetics (ISONG) Global Membership Committee and is the Research Chair for the Endocrine Nurses Society (ENS), Pediatric Endocrine Nurses Society (PENS) and Sigma Theta Tau Alpha Chi Chapter. In 2018, he was inducted into the National Academies of Practice as a Distinguished Fellow. Dr. Dwyer’s current research utilizes patient engagement, co-creation and digital solutions to address disparities in genomic healthcare.
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Professor Christine Patch
Professor Christine Patch PhD is Clinical Lead for Genetic Counselling at Genomics England, (https://www.genomicsengland.co.uk/), Principal Staff Scientist in Genomic Counselling, Society and Ethics Research Group, Wellcome Genome Campus, Cambridge (https://societyandethicsresearch.wellcomegenomecampus.org/) and visiting Professor at Sheffield Hallam University. In her role at Genomics England Chris has been engaged with the UK 100,000 genomes project and the transformation of the NHS genomic medicine service. Having started her career as a nurse her most recent appointment in the NHS was as consultant genetic counsellor in a clinical genetics service seeing patients and families as well as leading and developing the service. She has various academic collaborations exploring how best to use the advances in genetic technologies to benefit patients’ and families and has published peer reviewed articles, reviews and commentaries, books and more informal articles for patients and public. Her leadership roles in genetics in the UK and internationally include being co-lead of G2NA (2018-2020), past President of the European Society for Human Genetics, past chair of the British Society for Human Genetics, member of the public policy committee of the European Society for Human Genetics and past member of the UK Human Genetics Commission. In 2019 she was awarded the European Society for Human Genetics Award for contribution to Ethical, Legal and Psychosocial Aspects of Genetics.

Steering Group Members - Past

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Professor Maggie Kirk
Until her retirement in January 2018, Maggie Kirk PhD, BSc Hons, DipN, RGN, SFHEA, FRCN, worked as Professor of Genetics Education at the Genomics Policy Unit (GPU), University of South Wales, where she was also Faculty Head of Research from 2006-2013. Formerly a mammalian geneticist, Maggie moved into nursing in 1985 and worked in coronary care after qualifying. She commenced her career in higher education in 1992, taking up her post at the GPU in 1996. Since then Maggie has explored the impact of advances in genomic technologies on healthcare, assessing the implications for nurses and midwives in particular. From 2004-2012, she led the UK nursing programme for the NHS National Genetics Education and Development Centre and from 2013-2014, Maggie served as President of the International Society of Nurses in Genetics. In 2016, Maggie became one of the founder co-leads of G2NA with Dr Kathy Calzone. Now an Emeritus Professor, Maggie retains her interest in G2NA and the role of nurses in genomics healthcare.
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Dr Caroline Benjamin
Dr Benjamin PhD, RGN, RGC, BSc, MSc, is a Registered Nurse and a GCRB Registered Genetic Counsellor. She currently holds a Guild Fellowship (Healthcare Genetics), within the School of Nursing, at the University of Central Lancashire (UCLan). She has been involved in providing genetic counselling to NHS patients for the last 25 years and has clinical experience of the impact of new technologies over time on families with genetic conditions. She is a leader in the profession being on the Genetic Counsellor Registration Board and is involved in the development of the new training programme of Clinical Scientist: Genomic Counsellors for the National School of Healthcare Science. She sits on the European Society of Human Genetics Public and Professional Policy Committee, which raises awareness of genomic policy and ethical issues. Her research is into the psychosocial aspects of genetic conditions, the evaluation of different models of service delivery and genomic education. She is currently leading, on behalf of the North West Coast Genomic Medicine Centre, the National Evaluation of the Consent Process and Documentation in the 100,000 Genomes Project. Caroline is also part of the NHS Genetic Counselling team at the Merseyside and Cheshire Clinical Genetics Service, part of the North West Coast Genomic Medicine Centre hosted by the Liverpool Women’s NHS Trust, UK
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Professor Anna Middleton
Professor Anna Middleton PhD, MSc, RGC, has had two parallel careers – the first as a practising genetic counsellor, the second as a social scientist exploring the impact of genetic technology on people. Also a Professor/Affiliate Lecturer at the Faculty of Education, University of Cambridge, Anna currently works at the Wellcome Genome Campus in Cambridge, UK leading the social sciences research as Head of Society and Ethics. She is continually asking: ‘how is genomics impacting on people?’ and aims to find evidence-based ways to make genomics resonate for patients and their families. She is a previous vice-chair of the Genetic Counsellor Registration Board (UK and ROI) and immediate past-Chair of the Association of Genetic Nurses and Counsellors, serving as Chair from April 2018. Together with genetic counselling colleagues she has co-written the core curriculum for training genetic counsellors in the UK. Follow Anna on Twitter at @genomethics.

G2NA Aims and Objectives

Accelerating integration of genomics across everyday nursing practice

Vision

G2NA as the unified international voice for advancing and integrating genomics across nursing practice

Mission

Supporting the nursing profession to realise its full potential through integrating genomics across nursing practice to improve healthcare for all

Agree and prioritise

the collaborative efforts needed to realise a Roadmap that lays out how to integrate genomics across nursing education, practice and research